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(BPT) - Best known for his roles in Roots and Star Trek: The Next Generation and helming Reading Rainbow, actor, director and longtime health advocate LeVar Burton strongly believes in using his voice and passion for storytelling to help others.
Recently, Burton, who has spent much of his career bringing stories to life, has taken on a new role. He has teamed up with Incyte on a timely health initiative called You Have to Go to Know, which aims to elevate the voices and stories of people living with and impacted by myeloproliferative neoplasms (MPNs), a group of rare, chronic blood cancers. Burton hopes to encourage the MPN community to put their health first by seeking the care they need.
“When I learned people have been hesitant to visit their healthcare providers during the past year and a half, I felt compelled to use my voice. In particular, I learned that people with rare blood cancers called myeloproliferative neoplasms or MPNs, may have been particularly impacted and could benefit from re-prioritizing their health and visiting their healthcare providers,” said Burton.
The three most common MPNs are polycythemia vera (PV), myelofibrosis (MF) and essential thrombocythemia (ET), which combined affect about 200,000 people in the U.S..[i],[ii] MPNs can affect people at any age but are more common in older adults.[i] They are progressive diseases, meaning they can change or worsen over time, and the best way to manage an MPN is through regular visits with a healthcare provider to monitor the disease to identify any changes.
Over the past year, however, many people have avoided visits to their healthcare providers due to health-related anxieties. In fact, nearly 41% of U.S. adults surveyed in 2020 indicated they didn’t feel comfortable visiting their healthcare provider in the months following the onset of the pandemic.[iii] Delaying or avoiding medical care can lead to serious health implications, especially for people with chronic conditions like cancer.
“While I am not personally impacted by an MPN, I am reminded of my mother and her growing health challenges as she got older. She sometimes skipped her required doctors’ visits and follow up appointments, and I saw first-hand the negative impact it had on her health. My hope is that this campaign encourages the MPN community, and others with chronic conditions, to once again seek the care they need,” said Burton.
Burton is sharing what he has learned from his conversations with patients with MPNs to help inspire people within the MPN community and others with chronic conditions to once again seek the care they need:
Visit www.voicesofmpn.com to learn more about MPNs and explore the many resources available to assist you with scheduling and making the most of your doctor’s visits.
© 2021, Incyte Corporation. MAT-HEM-02301 07/21
[i] MPN Research Foundation. Understanding MPNs. Available at: http://www.mpnresearchfoundation.org/overview-page. Accessed May 2021.
[ii] Myeloproliferative Neoplasms (MPN). Myeloproliferative Neoplasms (MPN) | Leukemia and Lymphoma Society. (n.d.). https://www.lls.org/research/myeloproliferative-neoplasms-mpn
[iii] Anderson KE, McGinty EE, Presskreischer R, Barry CL. “Reports of Forgone Medical Care Among US Adults During the Initial Phase of the COVID-19 Pandemic.” JAMA Netw Open. 2021;4(1):e2034882. doi:10.1001/jamanetworkopen.2020.34882. Accessed May 2021.